March 28, 2024
The Minnesota Rare Disease Advisory Council (RDAC) is looking for a physician licensed and practicing in the state with experience researching, diagnosing, or treating rare diseases. The three-year term begins in January 2025.
RDAC is an executive branch state agency whose purpose is to improve care for the one in 10 Minnesotans living with a rare disease. RDAC is charged with the following:
provide advice on policies, access, equity, research, diagnosis, treatment, and education related to rare diseases.
provide resources, identifying and recommending best practices, identifying and addressing barriers faced by rare disease patients.
advise agencies of state government on policies related to rare diseases.
RDAC holds hybrid bimonthly meetings in January, March, May, July, September and November. In addition, all members are encouraged to serve on at least one working group/committee, which meets monthly.
Interested candidates can apply on the Secretary of State, Boards and Commissions Website: Open Positions Search (state.mn.us)
For more information, visit the RDAC website and/or contact the Executive Director Erica Barnes at erica.barnes@state.mn.us.
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On September 29, a Hennepin County jury issued an $84 million malpractice verdict against Fairview Health Services, in a case involving a patient who died of complications following an exercise-induced heart attack.
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